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Developing an International Data Governance Framework (IDGF)

Global mental health research requires sharing biological and behavioural measures across international cohorts to accelerate equitable development of treatments for all peoples. While brain and mental health research strives to become international, the lack of transparency and navigability of existing legal, ethical, and sociocultural guidance imposes barriers to data sharing. Building on the momentum of the International Brain Initiative, we propose a bottom-up approach to address these challenges by developing foundations for an International Data Governance Framework (IDGF). The long-term goal of this program is to form a sustainable global consortium to develop, operate and disseminate a robust brain and mental health IDGF similar to what has been accomplished in genetic research via GA4GH.