Publications
2022
The ethical and legal landscape of brain data governance
Paschal Ochang, Bernd Carsten Stahl, Damian Eke
Neuroscience research is producing big brain data which informs both advancements in neuroscience research and drives the development of advanced datasets to provide advanced medical solutions. These brain data are produced under different jurisdictions in different formats and are governed under different regulations. The governance of data…
2022
Towards a Governance Framework for Brain Data
Marcello Ienca, Joseph J. Fins, Ralf J. Jox, Fabrice Jotterand, Silja Voeneky, Roberto Andorno, Tonio Ball, Claude Castelluccia, Ricardo Chavarriaga, Hervé Chneiweiss, Agata Ferretti, Orsolya Friedrich, Samia Hurst, Grischa Merkel, Fruzsina Molnár-Gábor, Jean-Marc Rickli, James Scheibner, Effy Vayena, Rafael Yuste & Philipp Kellmeyer
The increasing availability of brain data within and outside the biomedical field, combined with the application of artificial intelligence (AI) to brain data analysis, poses a challenge for ethics and governance. We identify distinctive ethical implications of brain data acquisition and processing, and outline a multi-level governance…
2021
International data governance for neuroscience
Damian O Eke, Amy Bernard, Jan G Bjaalie, Ricardo Chavarriaga, Takashi Hanakawa, Anthony J Hannan, Sean L Hill, Maryann E Martone, Agnes McMahon, Oliver Ruebel, Sharon Crook, Edda Thiels, Franco Pestilli
As neuroscience projects increase in scale and cross international borders, different ethical principles, national and international laws, regulations, and policies for data sharing must be considered. These concerns are part of what is collectively called data governance. Whereas neuroscience data transcend borders, data governance is…